Looking to form a support group in Philadelphia area

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Looking to form a support group in Philadelphia area

Postby ellenrc58 » Fri Jul 31, 2009 10:20 am

I am a caregiver for my spouse who has recently been diagnosed with PSP. I would like to form a support group in this area as there is no active group available. If you live close by, please contact me at
rosenbere@yahoo.com
I a looking to start a support group for PSP caregivers in the Philadelphia area.
ellenrc58
 
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Joined: Fri Jul 31, 2009 10:17 am
Location: Philadelphia

Postby Robin » Fri Jul 31, 2009 11:11 am

There *is* a support group in Philly already. Have you attended and found it to be inadequate?

Date: 2nd Saturday of every other month
Time: 10:00 am
Location: Penn Neurological Institute
Contact: Joellen Dembowski, 215-829-5071
Robin
 
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Support group in Philadelphia

Postby ellenrc58 » Fri Jul 31, 2009 7:24 pm

I sent an e-mail to the person who is supposed to be running the group and got a bad address in return. Do you know if this group is actually still running? Ellen Caserta
I a looking to start a support group for PSP caregivers in the Philadelphia area.
ellenrc58
 
Posts: 7
Joined: Fri Jul 31, 2009 10:17 am
Location: Philadelphia

Postby Robin » Fri Jul 31, 2009 10:12 pm

Last time I talked to Joellen, it was running. I notified CurePSP back in December 2008 that the group leader they have listed - Jennifer Marcus - hasn't been with the Penn Hospital for over a year. I don't know why this change has not been made to their website. I sent my email again to Kate DeSantis about it again today, after seeing your email and confirming that Jennifer's name and email address is still on psp.org.
Robin
 
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Postby Robin » Mon Sep 28, 2009 10:12 am

Ellen,
There's a new support group leader -- Suzanne Reichwein, a social worker. Apparently there was a PSP support group meeting this past Saturday the 24th. Did you know about it? Meetings are now being held quarterly. Suzanne can be reached at: sreichwein@pahosp.com.
Robin
Robin
 
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PSP Meetings in Philadelphia

Postby ellenrc58 » Mon Sep 28, 2009 10:16 am

I was finally given the correct information and did attend on Saturday. I will bring my husband to the next session, as I did not know that this was not only for caregivers.
I a looking to start a support group for PSP caregivers in the Philadelphia area.
ellenrc58
 
Posts: 7
Joined: Fri Jul 31, 2009 10:17 am
Location: Philadelphia

Postby Robin » Mon Sep 28, 2009 10:23 am

You might think about starting a group that would meet in the months that the UPenn group doesn't meet?!
Robin
 
Posts: 3843
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA


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