Photos of Mom and Her Loving Family


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Photos of Mom and Her Loving Family

Postby CZ » Sun Jan 11, 2009 2:45 pm

Hi to all,

I'm SharonH's sister and wanted to share a few photos of our family....especially our beautiful Mom who has been suffering with PSP for 5 years now.

Enjoy a look into our family.
Photo 1 - June 2007 Dad's Father's Day gift - A ride on the plane!
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Photo 2 - July 2007 The Girl's - Mom's Surprise Birthday Party at the Golf Course
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Photo 3 - March 2008 The Jazz Game - Mom loves to watch the Utah Jazz so the girl's went to a game
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Photo 4 - March 2008 The Jazz Game
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Photo 5 - Christmas 2008 - Lots of smoothies coming up!
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Mother with PSP - SX since 2003 (misdiagnosed w/ Atypical PD) - DX w/ PSP Jan 2007
CZ
 
Posts: 11
Joined: Tue Sep 09, 2008 4:59 pm

Postby eplowman » Sun Jan 11, 2009 3:41 pm

CZ,

Nice pix. Nice B-17. (My dad was in the Army Air Corps in WWII.)

So, can you tell us the first names of each of you gals (flanking mom on the sofa, left, center, right). I think I see three pairs of blue eyes (incl. your mom). Does the third one also have blue eyes?

You mom is so fortunate to have such a wonderful family caring for her.

Thanks for sharing the photos.

ed p.

p.s. Even though you may be sharing one forum name (seems like a good idea to me), you each may want to sign your first name at the end of your posts. That could simplify things for you. Just a suggestion.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
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Postby Crazy Mary » Mon Jan 12, 2009 12:20 am

Hey, those are great pictures. That bullet is a great appliance to have. We use it for smoothies and a whole lot more. I assume your Dad was military. My Bruce was Navy and my stepson Mark is Air Force. He's in Irag now surrounded by Army and Navy, he says.
Keep taking those photos they will mean so much later. Your Mom is beautiful.
Mary
wife of Bruce 54 years old diag.2003 symptoms since 2001. Freed of PSP on Aug. 19th 2008
Crazy Mary
 
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Postby CZ » Mon Jan 12, 2009 10:34 am

Ed and Mary,

Thank you for your nice comments and for taking a moment to see our family. We do take a lot of pictures and will continue to share. Sharon and I both have separate names on the forum - we don't share a login. She is SharonH and I am CZ - my Dad also has a login (FrostieDoug2000) although he has posted just once.

In photo #2 the order is: Su (on Mom's right), Mom, Me (Carol) and Sharon on the floor). Ed, yes, Su and I both got Mom's blue eyes and Sharon got brown (Dad's are hazel). Dad is retired Air Force and is very proud of his service to our country - we are very proud to be Air Force "brats", too!

Thank you again for your kindness and support.
Mother with PSP - SX since 2003 (misdiagnosed w/ Atypical PD) - DX w/ PSP Jan 2007
CZ
 
Posts: 11
Joined: Tue Sep 09, 2008 4:59 pm

Postby SharonH » Mon Jan 12, 2009 6:39 pm

awwwww, Carol. some of my favorite pics of all of us!! I have a few more that I love from our Christmas play nite out too. Just have to figure out how to put them on here!!
Ed, I am the 'brown eyed' girl out of all of us!!! that is so funny that you notice that in all of us!! You are very kind.... Thank you always for your quick responses to us....
Sharon

daughter of PSP patient, "Pat", diagnosed 2004. Recieved her Golden Angel Wings Dec 14, 2009.
God give us all the strength to endure these trials placed upon all Patients of PSP and Caregivers..
SharonH
 
Posts: 22
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Location: Bountiful, Utah

Postby SharonH » Mon Jan 12, 2009 9:49 pm

Just wanted to share a few more special pics of our momma.....

My most favorite pic of momma, she is relaxing after gift opening, my dog "Lucky" is soooo attached to her, he always wants to be right on her lap whenever we are with her!!
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My Dad, I am so proud of him, not just for taking care of my momma, but just for being who he is, and raising us 'girls' and always taking care of his family. That is my husband, Kelly, with dad.
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Sharon (me) & Momma christmas day 2008, nice to see a bit of a smile on her face!!!
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Carol, Me & Momma
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Dad's Girls!! We took momma to a play at christmas time called Forever Plaid Tidings, she really enjoyed the music....
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I hope that isn't to many pics!! But I am a pic buff!! I love to take them and I have blog sites and myspace that I post all the time about momma, so that my friends and family afar can keep up on her. Thanks for taking the time to look at us!! I will post more later!!!
God Bless Us All..
daughter of PSP patient, "Pat", diagnosed 2004. Recieved her Golden Angel Wings Dec 14, 2009.
God give us all the strength to endure these trials placed upon all Patients of PSP and Caregivers..
SharonH
 
Posts: 22
Joined: Mon Sep 08, 2008 9:40 pm
Location: Bountiful, Utah

Postby eplowman » Mon Jan 12, 2009 11:13 pm

Gosh, we ought to have a party! Good pix, great family. It was wonderful to see that smile your mom cracked. And so good that you are spending time with her and taking her out while she's still able. It's doing her a world of good. Your helping her to seize today's moments of joy is just what the doctor would order. What magnificent support you are giving her. She will fare well for a long time under the care your dad and you are providing.

As for the eyes, journalists learn to size up details quickly. And it appears your mom's right eyelid is affected. (Does she still have fairly decent vision? I would assume she does, watching Utah play from that perch in the arena. If so, she and you are blessed!)

But I wasn't able to figure out the pooch's pedigree.... (That pup will be a great companion for your mom.) As for Christmas dinner, was it turkey and all the trimmings, or was that pork loin I see? Green beans and corn, or was it asparagus and macaroni and cheese? :) Now you know why I'm an almost retired journalist needing to make an app't with my opthalmologist..

For military "brats," you all turned out pretty good. Your dad must have been an officer. Do you still say, "Yes, sir"? :D

As for the party, please schedule it for an afternoon; some of us old folks don't see so well for driving at night.

ed p. (military brat of a captain in the Army M.P., Army Air Corps, and Air Force)
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
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Postby marmee4 » Tue Jan 13, 2009 11:06 am

I love your photos. Please inform as to how you imbedded them into your comments!
Nan
Nan

Husband, Eddie, age 66, diagnosed in March, 2005, symptoms since 2000; was escorted by a host of angels into the loving arms of Jesus on Friday, November 6, 2009,at 6 p.m., surrounded by his loving wife, childen, and extended family.
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Postby SharonH » Tue Jan 13, 2009 11:53 am

Ed,
You keep me laughing!! You have great spirit!! :) I appreciate you and your responses!! My dog is a chihuahua and he loves momma sooo much!! We do spend as much time as we can with her and take her out whenever we can!! Yes, it seems her right eye is worse than the left, you notice everything!!!

Marmee4,
I actually went to 'Ed's" post on here dated Nov 2007 and followed the instructions... It was actually quite easy to follow his instructions!!
Maybe he would be kind enough to post again!! If you cannot find it let me know and I will try to copy & paste for you!!

thank you all for taking the time to get to know our family!!
daughter of PSP patient, "Pat", diagnosed 2004. Recieved her Golden Angel Wings Dec 14, 2009.
God give us all the strength to endure these trials placed upon all Patients of PSP and Caregivers..
SharonH
 
Posts: 22
Joined: Mon Sep 08, 2008 9:40 pm
Location: Bountiful, Utah

Postby frostiedoug2000 » Tue Jan 13, 2009 12:58 pm

ed, very nice comments. Thanks for all the support you are giving my family, it is most appreciated. By the way I was and E8(SMSgt). Don't think the girls every said "Yes Sir", but the where very mindful. What part of Northern VA are you in, I was raised in Washington DC
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Postby eplowman » Tue Jan 13, 2009 3:52 pm

Doug,

Did you go to high school in D.C?

I've lived "inside the Beltway" in Annandale, Va. (since 1970) and "outside" in Ashburn, Va. (since 2004, when a stroke ended my full-time caregiving career with Rose and we had to hire help). Ashburn is located about halfway between Dulles AP and Leesburg, which is just five miles froms our house. (I live in an apartment in my son's house; two young grandkids delightfully are just steps away; my daughter and her family live only a mile away.)

A little personal military-relate history you can skip:

I was born in 1931 in Hanover, Pa. (just east of Gettysburg) in my grandparents' house. My dad was in the horse calvary based at Ft. Myer in Arlington. After my birth, he moved mom and me there. (He had enlisted in the 1920s, when Jonathan Wainwright was commander of the 3rd Cavalry at Ft. Myer.) So, my first memories of life are from an old rented house in the Cherrydale neighborhood of Arlington. We were in the deepest part of the Great Depression by then, and my very first memories (at about age 3) were being hungry. My dad, a lowly private, was a friend of the mess hall sarge, who would slip him some food to take home for the family. I believe his pay was about $21 a month. Then came along my three sisters, all born at Walter Reed. My dad was a star basketball player and quite a horseman among the troopers, so those years were not all gloom and doom. I went to games to watch the troopers play area college and military teams. The horse shows were more fun. Once, dad was riding a horse through hurdles and a hoop of fire. The horse suddenly stopped, and my dad went through the hoop of fire! The audience roared. My dad swore later the horse stood there looking at him and laughed, too. :D

Many moves and schools later, we ended up at Indiantown Gap near Harrisburg, Pa., when a short time later Pearl Harbor happened. My dad was an M.P. infantry captain. One day his commanding officer summoned him and informed him, "Plowman, we'll be moving out in a few weeks, but we don't think you should go, since you have six children. We're arranging for a transfer for you to the Air Corps stateside." (My dad's MP unit in the 28th Div. went on to England to train, and after the invasion, was among the first companies to step foot on German soil -- by accident, and among the first to get chewed up in the Battle of the Bulge. We learned of a number of "we regret to inform you" letters received from the families of friends my dad had commanded.)

We lived in Wilmington, Ohio, while my dad was based at Wright-Patterson during the war, then in Reading, Pa., where he was in charge of cleaning up crashes of B-24s during training missions, among other things. He took me to some of those gory sites. Ugh. The Army Air Corps became the U.S. Air Force, and dad received a medical discharge after the war at a hospital/base in Hempstead, N.Y.

He had a terrible fear of flying :D , so Rose and I were the ones who had to travel to visit them during our years in Dallas, San Diego, and San Francisco. He flew only once, to San Francisco. My mom said he was extremely nervous during boarding the United DC-8, and slept all the way in both directions. We think he popped some pills to help him get through the ordeal. :) He lived to be 85.

Good to meet you all.

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
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Joined: Tue May 10, 2005 10:22 pm
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More Pictures of Mom and the Family

Postby CZ » Sat Sep 19, 2009 5:07 pm

If you've read my sister's (SharonH) post from today, you are aware that my sweet Mom's PSP has progressed rapidly over the last year. I wanted to share some of our activities from this past 6 months - perhaps mostly to help me deal with the pain of watching my Mom suffer. My Mom has been the best mother, friend, confidante, and cheerleader that I could have ever wanted - I feel so blessed and proud to call myself her daughter.

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Mom and Me - March 6, 2009
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Mom and Cam (Grandson) heading to high school baseball game - March 13,2009
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Mom and Baby Ella - She was so happy to be holding her brand new great-granddaughter April 14, 2009
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Mom, Dad and Court (Grandson) at baseball game (spring high school sports in Utah can be quite chilly!) April 28, 2009
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Mother's Day with the whole family at Buca Di Beppo - May 2009
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Mom, Dad and the Girl's - Mother's Day 2009
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Mom and Dad at Cam's baseball game - enjoying the hot Utah sun - July 24, 2009
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Mom and the Girl's (from left Su, Carol, Sharon) after a beautiful blessing was given to Mom - August 23, 2009
Mother with PSP - SX since 2003 (misdiagnosed w/ Atypical PD) - DX w/ PSP Jan 2007
CZ
 
Posts: 11
Joined: Tue Sep 09, 2008 4:59 pm

Postby eplowman » Sat Sep 19, 2009 10:48 pm

Carol,

Thank you so much for these latest pix. What a wonderful family surrounds your mom. It was great to see her smile while holding Baby Ella! And great that you captured it "on film" (digitally speaking :) )

It does appear from this distance that your mom's step down to the current plateau (in PSP) since last spring was a steep one. I was amazed at how well she looked at the table on Mother's Day. And she wasn't even in a wheel chair? (Or was it a transport chair?)

I'm glad you and Sharon jogged my memory by sending us back here to the Back Porch and these pix. I apologize for not having all the pieces snap together in memory when you posted the recent update in General Discussion. One of the perils in the aging process....

Please keep us updated on your mom. Although this plateau may be alarming, it may last much longer than you expect (as we saw in my late wife's case). Just assume your mom is no less aware than before.

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
Posts: 3659
Joined: Tue May 10, 2005 10:22 pm
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A Special Day for Momma & Rafi

Postby SharonH » Sun Sep 20, 2009 10:59 pm

Today I took momma to see one of our PSP support group members, Rafeala Perez aka "Rafi", we have not gotten to see her for about a year and half due to the fact that our group coordinator left to CA and we have not been able to set up meetings lately. We started our meetings with 6 members and now we have only 3...
So to the good news!!
I decided this morning that I NEEDED to go see Rafi & Max (her husband) TODAY so when I was driving to their house which is about 40 miles from mine, I called my dad and told him that I would like for him and momma to go with me. When we walked into Rafi's home, I went to her and said hi and she lit up with the biggest smile her husband has seen on her face in a long, long time! My momma was also excited, (I could tell by the way her eyes got so huge, and the expression on her face) I knew right then that I had done the right thing by bringing these two wonderful people together again....I joined their hands together and know deep inside me that they were communicating somehow and feeling each others love. I then took each of their hands and put them in mine and said a prayer, when I said Amen, Rafi said "yeah"......This was an awesome experience for me and them I am sure. And for my dad and Max to see each other again, and remind themselves that they are not Alone in this journey was a good thing.. I will cherish this day for the rest of my life.
I believe that My Momma & Rafi will be best friends in Heaven.

My Momma-Pat & Rafi Perez
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daughter of PSP patient, "Pat", diagnosed 2004. Recieved her Golden Angel Wings Dec 14, 2009.
God give us all the strength to endure these trials placed upon all Patients of PSP and Caregivers..
SharonH
 
Posts: 22
Joined: Mon Sep 08, 2008 9:40 pm
Location: Bountiful, Utah

Postby eplowman » Mon Sep 21, 2009 11:40 am

A wonderful meeting you arranged, Sharon. And a great photo! It was both heart-warming and heart-breaking to see these two great women together like this. Both are obviously loved and well cared for.

Thanks for sharing.

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
Posts: 3659
Joined: Tue May 10, 2005 10:22 pm
Location: USA (Northern Va.)

Postby CZ » Mon Sep 21, 2009 11:55 am

Ed,

Thanks for always taking the time to comment on our posts - much appreciated! And, you always have such good advice and insight!

To answer your question regarding Mom at the Mother's Day table and a wheelchair - No, she was still using her walker (with stand-by assistance as her balance was not good and her eyes would be closed or locked upward) at that time. In fact, up until about June 26th, she was able to walk a mile, go shopping in the mall, walk to the grandkid's sporting events, etc. It was a DRASTIC change over a matter of days. She is now wheelchair dependent - her ankles have begun to turn inward and she can not support herself. Incredibly sad....
Mother with PSP - SX since 2003 (misdiagnosed w/ Atypical PD) - DX w/ PSP Jan 2007
CZ
 
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Joined: Tue Sep 09, 2008 4:59 pm

Postby eplowman » Mon Sep 21, 2009 5:38 pm

She WALKED a mile as late as June???!!! Wow. If she's still eating and taking fluids with not much choking (and little loss of weight), and with all the great loving care she's getting, she could survive much longer than you expect. It will be sad for you girls and your dad to see the increasing limitations and other hits PSP imposes as time goes on. But I have no doubt your strong love, spirit, faith, and courage (as we've seen here) will keep you on course -- of faithful help and encouragement to your mom.

Check her back and spinal column every couple of weeks. In the final months of my Rose's life, the hospice doctor pointed out how her spine was twisting, like a mountain road. Neither I nor our caregivers had noticed before that. It was scary (like the more obvious neck rigidity and head tilted upward and back) , but there was nothing we could do about it. Mercifully, she felt no pain; that's what our doc told us to be alert to.

Keep us updated. Lean on each other when the way gets more difficult. Hearing you laugh and chatter will be a tonic for your mom.

All the best,

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
Posts: 3659
Joined: Tue May 10, 2005 10:22 pm
Location: USA (Northern Va.)

Postby CZ » Wed Sep 23, 2009 11:47 am

Ed,

Yep! She would WALK a mile with her walker and standby assistance to help steer and maintain balance! Pretty amazing, isn't it! We felt so lucky that her legs remained strong so she had some small bit of independence left. She and Dad were/are avid golfers so perhaps the leg strength went along with that - her legs were just used to going?? It makes me think of Janet Edmunson's book "Finding Meaning with Charles" where she described Charles' daily run even though all else was deteriorating. You can imagine how difficult it has been to see the very last bit of her ability gone.

Thank you for the information regarding her spine - I did check it this week and it appears to be inline. I also mentioned it to her Hospice nurse and we will continue to keep an eye on it.

As for her condition and eating, etc - not good. She has lost 13 pounds in 2 months (5 in the last 10 days), 46 pounds since January. While we continue to try to get some nourishment in her, it is a very difficult and time consuming process. You, I know, are very well aware of this as I have read your posts about mealtime with Rose. Some days are better than others - none are never great. Yesterday the only thing I was able to get in her over 6 hours was a small fruit & ice cream shake and a glass of ice water - and even that required the occasional use of a tongue depressor to stimulate the swallow reflex. Obviously, she does not want a feeding tube so we keep trying and keep watching her waste away - it's incredibly horrific to watch your loved one basically die before your eyes.

We did, however, go for an hour walk (in her wheelchair of course) and she loved it! It was high-70's with a little breeze and she squeezed my hand when I asked if it felt good. We do still get her out as much as possible and, as long as she squeezes our hand that she wants to, we will continue. In fact, she will coming to my son's football game tomorrow!

Might I throw in how incredible my Dad has been! The strength and courage he has shown is an inspiration to the entire family - I can't imagine how hard it must be for him to watch his love of 55 years go through this. Only those of you that have had to endure this loss can completely understand.

Thanks as always!
Mother with PSP - SX since 2003 (misdiagnosed w/ Atypical PD) - DX w/ PSP Jan 2007
CZ
 
Posts: 11
Joined: Tue Sep 09, 2008 4:59 pm

Postby eplowman » Wed Sep 23, 2009 12:52 pm

Carol,

Yes, I know too well how you and other family members must feel as you deal with the food and fluid intake issues. I had not realized (or remembered?) that your mom was not doing so well on that front and losing weight. If this pattern persists (and, sad to say, it likely will), she indeed may not be suffering much longer.

I'm still amazed -- a mile walk with the walker just four months or so ago. Wow. I think you're right about years of golf probably accounting for her strong legs.

Meanwhile, my impression is that she is receiving some of the best care any PSP patient can have, and right in her own home, thanks to you girls and your dad.

Thanks again to you and Sharon for the pix.

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
Posts: 3659
Joined: Tue May 10, 2005 10:22 pm
Location: USA (Northern Va.)


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