Fact Sheet on PSP - NINDS/NIH

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Fact Sheet on PSP - NINDS/NIH

Postby Moderator » Thu Jan 20, 2011 2:00 am

A valuable resource.

Click on this link to see the Fact Sheet on PSP published by the NIH's National Institute of Neurological Disorders and Stroke (NINDS):


Many forum members have found it to be helpful to print out copies to give to doctors, nurses, and aides who see the patient. Most medical professionals (excluding knowledgeable neurologists) know little or nothing about PSP; many have never even heard of it.

As needs arise, patients may be referred to a family doctor, therapists, and other health care and/or social workers. Handing a copy of the Fact Sheet to these care providers will earn you their thanks and appreciation. It will help them grasp the basics quickly and assist them in understanding and serving the patient -- a huge plus for everyone.

Also, you may find it helpful to distribute copies to relatives and close friends of the patient.

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