FTD Disorders Registry is now live

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FTD Disorders Registry is now live

Postby Robin » Sun Apr 09, 2017 11:22 am

The FTD Disorders Registry is an online database to collect information from those affected by all types of Frontotemporal Degeneration: behavioral variant FTD (bvFTD), any one of the primary progressive aphasias (PPA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or FTD with motor neuron disease (also called FTD-ALS). Persons diagnosed, caregivers (current/former), family, and friends can join and tell your story.

I encourage all those affected by PSP to join the registry.

www.ftdregistry.org?utm_campaign=websit ... etwork.org

Even if your family member has passed away, you can still join the registry and tell your story.

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