compulsiveness


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compulsiveness

Postby Catherine27 » Thu Jan 19, 2017 12:23 pm

Has anyone noticed a compulsiveness with the person with PSP? My husband will hit himself repeatedly and sometimes for several minutes at a time. He will often use his thumb and hit it against his cheek, chin or forehead sometimes causing the skin to break. He will also pick himself until skin is broken and bleeding occurs. He usually picks his neck in the back, his upper thighs and lately has picked his palm and between his fingers. He will hit his hands against the table repeatedly not stopping when prompted, we usually have to physically stop him. We are addressing this with the doctor and looking into medications but I just wanted to see if anyone else has experienced this.

Kelly
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Re: compulsiveness

Postby Brutus22 » Thu Jan 19, 2017 1:22 pm

We have a different situation where Mick will not let go of the tv remote and he will continue to press the numbers over and over until I take it away. I timed him once at 16 minutes before I took it away. Our doctor did warn us about compulsive behavior in the very beginning. Mick liked going to the casino but we no longer go because he does not know when to stop.
Terry
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Re: compulsiveness

Postby daranch » Mon Jan 23, 2017 12:59 am

Oh, yes, the compulsiveness! My hubby is about 6 years into this disease and it seems like his compulsions change as time goes on. I think of the compulsiveness as impulsive behavior that is driven by impaired executive functioning I.e. Ability to make judgments, like cause and effect. Dave will pick at, say, scar tissue from so many falls and injuries. He just can't think "if I pick at this, I will start bleeding so I won't do it." He used to always say Goodbye at the end of a sentence. Then say he wishes he could stop saying goodbye. He doesn't do that anymore though. He can't keep his hands off his condom catheter at night. He rubs his feeding tray constantly. He won't let go of things. I have to keep the napkin dispenser out of react because he will stuff them in his mouth to soak up drool and not release them. I've tried fidget toys and it really helps to keep his hands busy but he goes through them pretty quick. His favorite fidget is this stretchy stuff I get from Amazon. He'll play with it for hours. It's pretty inexpensive. Just search fidget toys. Sorry, I didn't keep the wrapper and can't remember just what it's called. My best advice...try to keep his hands busy.
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Re: compulsiveness

Postby Catherine27 » Wed Jan 25, 2017 12:36 pm

Thank you for the replies, I will look into the fidget toys, this is the first I am hearing of them. My husband is into his 11th year and I can honestly say I never thought he would make it that far when I first heard of PSP, but being that I believe he has PSP-P he is surviving longer than originally thought. We are now dealing with severe chewing and swallowing issues , heading to another swallow evaluation in a week and discussing alternative feeding. His doctor mentioned peg-tube feeding so we are looking at that. He said years ago he didn't want a tube but now that we are at that point he is thinking about it. I've read most people opt not to have it.

Kelly
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