Brain Support Network Blog Posts


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Brain Support Network Blog Posts

Postby Robin » Mon Jan 09, 2017 10:20 pm

This is our busiest time of year for brain donations. So I no longer have time to post items to Brain Support Network's blog, to BSN's Facebook page, to our various email lists AND to the PSP Forum. So I try to get them to BSN's various information channels and leave it at that.

Check out Brain Support Network's blog here --

https://www.brainsupportnetwork.org/blog/

Some items recently posted that may be of interest to those on this Forum include:

* "Year of Conquering Negative Thinking"

* "Eight Rules to Become a Smarter Patient"

* "My sister made her end-of-life wishes clear. Then dementia took hold"

* "Pain in Parkinson's Disease" webinar, January 10th

* "Nursing home residents gain more power"

* Problems families dealing with dementia may face

* PSP overview from UK medical professional reference website

* "Caring for a loved one at home can have a steep learning curve"
Robin
 
Posts: 3840
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Brain Support Network Blog Posts

Postby Robin » Mon Feb 20, 2017 7:26 pm

Here are some recent highlights from the Brain Support Network blog.

https://www.brainsupportnetwork.org/blog/


* Short podcast on Parkinson's Plus conditions (CBD, PSP, etc) with Dr. Golbe

* Tips for fall prevention in the home

* "How to ask for the help you need"

* Article in Cosmo about woman in her 30s caring for dad with PSP

* Facial masking - blog and podcast notes

* How to have hope? (some ideas from those with PSP)

* Podcast on brain atrophy in PSP and CBS

* NextStepInCare.org - useful website for care transitions

* "How delirium can be different than dementia"

* "Care Paradigm" - webinar notes

* Blood test to identify who has PD vs. PSP/CBD/MSA

* "The PSP Chronicles" - blog by man in UK with PSP

* "8 Extraordinary Things You Need to Know About People with Chronic Illness"

* Caregiving Guidelines (six important points when providing care)

* "When Looking for a Nursing Home, You May Get Little Help From Your Hospital"

* Compassionate communication and managing difficult behaviors

* Instructions for moving a patient from bed to wheelchair

* "Last Dance at the Savoy" - memoir by a PSP caregiver

Of course if you'd rather have all of these emails in your inbox, you can join the Brain Support Network email list for PSP and general caregiving or dementia caregiving.

Happy reading,
Robin
Robin
 
Posts: 3840
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Brain Support Network Blog Posts

Postby Robin » Tue May 09, 2017 10:31 pm

Check out recent highlights from Brain Support Network's blog here --

https://www.brainsupportnetwork.org/blog/

Some items recently posted that may be of interest to those on this
Forum include:

* "Caregiver Helpbook" - notes from chapters 1 through 6

* "Living Guilt Free" - notes from a one-hour talk

* "Respite Care: Finding and Choosing Respite Services"

* "Grieving Before a Death: Understanding Anticipatory Grief"

* "How do we cope with anger as a caregiver"?

* "13 Secrets That Make Caregiving Easier"

* Urinary problems in Parkinson's - webinar notes

* Complementary and alternative medicine in Parkinson's - webinar notes

* Blog by Debra Ford, whose husband Dave has PSP

* Johns Hopkins Overview of PSP

* Supranuclear gaze palsy occurs in more than just PSP

* "Multimodal Imaging Ties Tau to Neurodegeneration, and Symptoms"

* "A mother's strength" (article about PSP)

* Predictors of survival in PSP and MSA

* "The stigma of a neurologic disorder can be stressful"

* Five E’s of empowered living with chronic illness

Of course if you'd rather have all of these emails in your inbox, you
can join the Brain Support Network email list for PSP and general
caregiving.

Happy reading,
Robin
Robin
 
Posts: 3840
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Brain Support Network Blog Posts

Postby Robin » Thu Aug 03, 2017 6:47 pm

Provided below are some highlights from the July 2017 Brain Support Network Blog.

If you'd like to receive individual items in your inbox as they are posted to the blog, you can join our disorder-specific email list(s) and caregiver email lists --

http://www.brainsupportnetwork.org/abou ... mail-list/

Or you can check out the Brain Support Network blog here --

http://www.brainsupportnetwork.org/blog/

Some items recently posted to the blog that may be of interest to those on the PSP Forum include:

* Save the Date! Saturday, October 28, PSP/CBD Research Update and Family Conference, Crowne Plaza Foster City (San Francisco Bay Area)

* PSP and CBS excerpts from curriculum on dementia for healthcare professionals

* Inheritability of PSP

* "Square patches of light remember you" - reflections on grandmother with PSP

* Drawing and using a care map

* 13 ways to practice self-care as a caregiver

* Apathy - description and treatment

* "How to improve resilience in midlife" (NYT)

* "Recording a legacy: How to create a life journal"

* "11 signs it may be time for assisted living"

* "What happens to a marriage after Parkinson's"

* "Avoiding caregiver isolation" - notes from a talk

* "The pain of caregiving"

* "Five ponderable thoughts" about grabbing "a second chance to live life"

* "How to choose a dementia care facility. Avoid my mistakes."
Robin
 
Posts: 3840
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA


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