Age at first symptoms - A SURVEY


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Age at first symptoms - A SURVEY

Postby eplowman » Wed Dec 07, 2016 11:26 pm

A. If someone informed you that one of their friends became very ill during his or her prime of life, would you assume that this ill person most likely would be in the following age range:

1. Age 25-35
2. Age 36-55
3. Age 37-60
4. Age 40-65
5. Age 36-75
6. Over age 65

A. Choose one: ______

B. If you cared (or helped to care) for a family member with PSP, CBD, FTD, or MSA, at what age did that patient's first noticeable symptoms start appearing?

B. It was at about age: ________

C. Eventual diagnosis of this condition:______________ By a neurologist, or other doctor______________ Autopsy Verified? Y___ No___

Instructions: (1) Click on "Post" to Reply. (2) Then for A., enter "A." and the number matching the age group you choose. (3) Next, for B, enter "B." plus the age of the patient at first noticeable symptoms. (4) Last, for C:, enter "C" and diagnosis of the condition, whether it was a neurologist who made the eventual diagnosis, or a different M.D., and finally, indicate whether the diagnosis was verified by autopsy.

Please do reply. And thank you for your cooperation. This information can be helpful to researchers.

ed p.

Last edited by Moderator on Thu Dec 08, 2016 12:08 am, edited 1 time in total.
Reason: Change from anncmt to Normal for placement
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
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Re: Age at first symptoms - A SURVEY

Postby eplowman » Thu Dec 08, 2016 12:37 am

A. 2

B. 1999 at age 69

C. PSP - neurologist - autopsy verified

ed p.
|My wife of 56 years was Rose b. 1930, dx 1999, symptoms from 1997; d. 06/21/08; PSP-rs autopsy confirmed.
eplowman
 
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Re: Age at first symptoms - A SURVEY

Postby zymurgy » Thu Dec 08, 2016 8:45 am

A. 6

B. 2008 ior 2009 age 70 or 71

C. 2013 neurologist, Still alive
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Re: Age at first symptoms - A SURVEY

Postby myownwoman » Thu Dec 08, 2016 1:28 pm

A. 4

B. 66

C. 2010, by a neurologist which, unfortunately, was unverified.
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Re: Age at first symptoms - A SURVEY

Postby Brutus22 » Thu Dec 08, 2016 1:44 pm

A 6
B 55
C 2012 neurologist still alive
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Re: Age at first symptoms - A SURVEY

Postby HelpingDad » Thu Dec 08, 2016 7:05 pm

A. 4

B. 2014 age 71

C. 2016 neurologist CBD, still alive.
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Re: Age at first symptoms - A SURVEY

Postby grandmakcat » Tue Dec 13, 2016 10:53 am

A. 4

B. 57

C. 2014 by Neurologist team at VA / no autopsy / died age 64 July 9, 2016
Husband Dennis 1952-2016 aged 64 - PSP diagnosis 2014 - first symptoms around 2009 / Vietnam vet / Cause of death - complications from PSP; aspiration pneumonia 7/9/2016
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Re: Age at first symptoms - A SURVEY

Postby lakegirl51 » Wed Dec 14, 2016 9:18 pm

A. 3
B. 66
C. Neuro
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Re: Age at first symptoms - A SURVEY

Postby Catherine27 » Wed Dec 28, 2016 12:39 pm

A. 2

B. 54 - 2005

C. PSP by 3 different neurologist;
Dr. Steven Reich - 2007 - John Hopkins
Dr. Eric Molho - 2009 - Albany Medical Center
Dr. Xuemei Huang - 2013 - Hershey Medical Center
Catherine27
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Re: Age at first symptoms - A SURVEY

Postby daranch » Mon Jan 23, 2017 1:04 am

A. 3
B. 58
C. Neurologist at Movement Disorder Clinic at research hospital
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Re: Age at first symptoms - A SURVEY

Postby jmarsano » Thu Mar 09, 2017 11:07 am

A. 5
B. Age 62 in the Fall of 2014
C. Diagnosed:PSP Dec. 2015/ Neurologist/ Died from a fall May 2016 Age 64/ Autopsy verification: no
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