Support Group


Moderators: Moderator, phpBB2 - Administrators

Support Group

Postby willie8 » Sun Oct 26, 2014 10:50 am

Anyone here familiar with the PSP support group at the Banner Thunderbird Medical Center in Glendale AZ?
Information will be greatly appreciated.
Thanks
Bill
willie8
 
Posts: 2
Joined: Sat Mar 31, 2012 3:44 pm
Location: North Phoenix/Central Illinois

Re: Support Group

Postby Robin » Sun Oct 26, 2014 3:38 pm

The gentleman who runs the group lost his wife to PSP a couple of years ago. What info are you looking for?
Robin
 
Posts: 3844
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA

Re: Support Group

Postby willie8 » Sun Oct 26, 2014 3:54 pm

We are snowbirds from Illinois. My wife is in her 3-4th year of PSP. I have been taking care of her 24/7 since she became non-ambulatory in May. I noticed there is a support group here. I am calling them Monday. I was just inquiring about the group. Have you been to the group? We need information about PSP - what to expect and when.
Thanks
Bill
willie8
 
Posts: 2
Joined: Sat Mar 31, 2012 3:44 pm
Location: North Phoenix/Central Illinois

Re: Support Group

Postby Robin » Sun Oct 26, 2014 7:22 pm

I have never attended. I run a very large PSP and atypical parkinsonism support group in the San Francisco Bay Area. As the founder of Brain Support Network, I help people around the US make arrangements to donate a loved one's brain. I've helped many people in the two AZ PSP support groups make these arrangements.
Robin
 
Posts: 3844
Joined: Fri Feb 20, 2004 2:32 am
Location: USA - Northern CA


Return to General PSP Discussion

Who is online

Users browsing this forum: No registered users and 8 guests

cron