Hereditary?


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Hereditary?

Postby Ru40 » Wed Aug 13, 2014 7:54 am

Good morning friends! I am not new to this Forum but have not been active since my husband passed away in 2010 from PSP. I have registered with a new but familiar user name to some of you, as Ru40. I have not gone into depth on the discussions searching for answers to the question that I am going to ask but would appreciate your input or any new information that you might have to date.

Has anyone on this Forum reported PSP symptoms in more than one family member? Is there new information regarding whether PSP is hereditary?

Hoping to spend some time catching up on the General Discussion but "old friends" know that my favorite place is the Back Porch...so maybe I'll see you there soon! And thanks for your help!

Ru
W.G. Jackson (1939-2010)
PSP symptoms/1995
Ru40
 
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Re: Hereditary?

Postby Robin » Wed Aug 13, 2014 8:25 am

Good to see your name on the Forum again Ru!

PSP does not seem to be inherited. I've heard that perhaps only 5% of PSP seems to run in families.
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Re: Hereditary?

Postby Ru40 » Wed Aug 13, 2014 12:30 pm

Thank you Robin for your quick response. You said exactly what I want to hear because I'd hate to think of either of my children getting this horrible disease! I know that in many cases the victim of PSP may be traumatized initially which may set off symptoms and that seems to be what happened with my husband. I know that trauma to the nervous system could possibly cause what I would call "false symptoms" and lead to a wrong diagnosis...just my own scenario. I don't want to get paranoid but the thought is always there in my mind and I'm constantly rebuking myself for thinking such!

On a different note, I met a young woman yesterday who was escorting what appeared to be an older man with a walker into the Wellness Center (gym). As she held the door for him he was on his tip toes, rocking back and forth and trying to get his brain and his steps in sinc. His feet were several steps behind the walker and once he started walking, it was a shuffle. They were registering him for the Silver Sneakers program so I didn't get to speak to them right away. Once he was in the gym and on a machine, I went over to ask about his diagnosis and the young lady told me he had Parkinson's... I did not notice a tremor but I don't know if all Parkinson's patients have a tremor. His voice was very low which is a common symptom. He seemed alert but his walking reminded me so much of my husband. I hope to see them again and tell them about this Forum.

I will be checking in now and then as time permits. As always, my prayers for those who are fighting the battle are constant! May God Bless you as only He can!

Ru
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Re: Hereditary?

Postby Robin » Wed Aug 13, 2014 3:08 pm

Actually, about 40% of those with PD have no tremor!
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Re: Hereditary?

Postby JoB » Thu Aug 14, 2014 5:30 am

Dear Ru:

You may want to look at:
http://ghr.nlm.nih.gov/condition/progre ... lear-palsy

which says in part:
"Most cases of progressive supranuclear palsy are sporadic, which means they occur in people with no history of the disorder in their family. However, some people with this disorder have had family members with related conditions, such as parkinsonism and a loss of intellectual functions (dementia). When progressive supranuclear palsy runs in families, it can have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means one copy of an altered gene in each cell is sufficient to cause the disorder."

Courage, Joe Blanc
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Re: Hereditary?

Postby MichiganMom » Wed Feb 11, 2015 3:57 pm

It has been awhile since I have posted. My Mother in Law has declined but it has leveled out over the last year (or maybe we are just getting used to it?).

Mom was diagnosed in 2011 with PSP. Her oldest son was diagnosed with Parkinson's a year later. They both are interviewed annually by a neurologist at Mayo in Florida who is following their cases. It might just be a crumb of info but if it leads to a crumb trail, all the better!
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